‘That group includes doctors from across the country, including the University of Colorado, the CDC, Yale University, Stanford, and the University of California, San Francisco. In the CDC’s Morbidity and Mortality Weekly Report, the doctors reveal chilling accounts of five patients who pursued such bogus treatments. What followed was years of heart-wrenching suffering, avoidable life-threatening infections, and death…’
Source: Ars Technica
The fact that the diagnosis is not well-founded is less the problem than that the putative sufferers fall victim to snake oil salesmen. It seems to me that, if you seek help for a controversial syndrome you have to hold the caregiver to a higher, rather than a lower, bar regarding the plausibility of the approach they suggest.